Jennah fresh out after emergency c-section, pale, not breathing
As with any birth of a child, lives are changed forever as families welcome a new being. However, with Miss Jennah, it felt like we moved into a parallel universe. Everything was unknown. Her very survival was questionable. I could no longer look to the books that I had studied such as, “What to Expect When You’re Expecting” since this was not at all what we were expecting, or even “Your Child’s First Year” since we didn’t know if she would survive her first year at all. Months later we would gain books on epilepsy and cerebral palsy. Not necessarily the books you plan to have on your bookshelf …
Nonetheless, Jennah has been my biggest accomplishment and my pride and joy. She makes my life worth living. Of course, I love my husband and my other two children, but Jennah is the one who is completely dependent on me and will continue to be for a long, long time. I don’t mind one bit and wouldn’t trade our situation in for the world. Lately, I have realized how much I actually enjoy my life. Aside from our exotic living situations, I never get bored. I’m always busy juggling A & B’s schedules and caring for Jennah at the same time. I feel guilty that my hubby has to work day to day and remember those days of going to work every day, drive the same road, enter the same building, sitting my butt on the same old chair, which, let’s face it, we keep the same old chair since it has molded comfortably to your ever growing, ever sagging butt.
With Jennah, there’s always a surprise or something new to tackle. She keeps my life an appreciated challenge. Changes in drugs, changes in her weight, changes in my weight, new abilities that she’s developed, the threat of a seizure or aspiration on her own saliva or spit-up, the occasional diaper blow-out, which would typically be gone with potty training, and heaps of equipment that enables me to care for her day to day. She’s even made me the healthiest and fittest I have ever been. It’s the only way I can keep up with the physical demands of caring for her.
To top it all off, I have AMAZING, and admittedly quite beautiful, friends EVERYWHERE! Be it here in the States, or back in Dubai … or even if I end up in Germany, South Africa, or New Zealand for some odd reason, I have friends who will be there to support me. You are all absolutely amazing … thank you. From the bottom of my heart and the core of my soul, thank you.
And to keep things exciting for Jennah’s 1st week of her 3rd year, we will enjoy a 24-48 hour inpatient stay at Swedish Hospital for a video-monitored EEG. She’ll be hooked up with 20+ electrodes cemented to her head and confined to our hospital room as she is videotaped to record her actions with brain activity. The goal is to see what type of seizure activity may be left and if they are worth treating further to avoid more brain damage. Ideally, we would like to being weaning her from the last medication that she is currently taking. Hard to believe that there was a time during her 1st year when she was on 4 anti-seizure medications simultaneously and has actually tried 10 different types of meds altogether … what a life.
Jennah has now awakened from a little birthday slumber, so off I go to play with one of the best things I have ever made …