Not because the cast will cover nearly every part of her lower body just short of her feet, but because she went into a giggling fit last night around 11 PM while my bro and I were watching Harry Potter and the Deathly Hallows. I don’t know what set her off, but she just started giggling and squealing so loud that grandma woke up and ran downstairs to see what was going on. Jennah was, and is today, so happy and in such a great mood. No pain, no constipation, just fun and laughter.
I wanted to pick up the phone and call the 24/7 surgery line and cancel this whole blasted thing. I’ve spent most of today preparing for tomorrow and the upcoming week’s madness. Make sure A & B have clothes to last the school week. Clean up the bedrooms so they have some place clean to sleep, get dressed, and brush their teeth. I don’t know how much of them I’ll see this week. I don’t know if they understand what is going to happen to their little sister. Maybe that’s a blessing, actually.
We are all spending a lot of time snuggling and cuddling with sweet little Jennah today. It’s going to be hard to do the same when she’s in a body cast.
Her last feed will be at midnight. Her last clear liquids at 4 AM. After I make sure A & B's breakfast and lunches are prepped, we’ll leave at 6:30 to get to the hospital in time for our 7:15 checkin. Then we pray and pray until we see her again, 6 hours later, inshallah.
I’d be happy if tomorrow never came …
Sunday, April 24, 2011
Wednesday, April 20, 2011
Around the World in 6 Hours …
That’s what Jennah’s orthopedic surgeon calls it, “the ‘Around-the-World’ procedure”. I guess the “world” is the femur head. Jennah was officially cleared for surgery last Tuesday after spending most of the day at Seattle Children’s. Using my C.A.P. (Clinic Access Pass for unfortunately frequent patients), we were checked in for a day for clinic visits. We started out getting measured for her spica cast, which will go from her waist to her ankles. Crap! I just remembered that I forgot to request a color‼ I really don’t want hot pink … chime in your opinions now! I’m thinking purple? Aqua blue would be nice. OK, sorry … totally diversion there. I’m in a bad mood from studying, reviewing the hospital check lists and preparations, and my thoughts are everywhere, but I’ll try to limit the rantings …
So where was I? Yes, she’ll be in a spica cast for 6 weeks and then put into a brace, for which I did manage to request purple cushions! The brace will be removable for baths and we’ll wean her off within another 6 weeks, inshallah.
Then we went in for xray. We’ve had so many xrays that we should be issued a radiation monitor button. The usual …
XRay tech: “Mom, any chance you can be pregnant?”
Me: “Good lord, I hope not!”
Same conversation every time. I don the lead apron, which sadly I recognize are new since our last visit a few months ago. I take off Jennah’s diaper and she proceeds to urinate, as usual, on the table despite my pleas for her to pee beforehand. The girl just does not listen to her mom’s instructions! :)
Our next visit is with the surgical team … our surgeon, a resident, a physician’s assistant, and his nurse (who won’t be in the surgery, but she’s awesome). While waiting, Jennah took the opportunity for a nap in my lap and I finished my homework due later that evening. The “Around-the-World” procedure consists of the following:
• Bilateral acetabuloplasty – reshaping of the hip socket (acetabulum); nails may be inserted to help shape and then removed after a year or two
• Bilateral osteotomy – reshaping the femur heads
• Bilateral tenotomy – cutting of abductor and adductor muscles to manually loosen the tone and, hopefully, prevent dislocation again in the future.
Procedure, including anesthesia, will last upwards of 6 hours. Anticipate at least 4 days in the hospital post-op. Expect a lot of discomfort and pain. She’ll have an epidural put in. Expect recovery to last throughout the summer. Good times. Pray a lot.
Then it was time for our P.A.S.S. (Pre-Anesthesia Surgical Services) appointment. The most non-invasive appointment of our day and Jennah loses it. She screamed bloody murder through the whole meeting and all the way through the halls as I tried to calmly carry her (32 lbs of screaming, wobbling Jennah) to the outside. You can see the poor kids in the surgical waiting area thinking, “What in the hell did they just do to her behind those closed doors???‼!”
After calming her down and forcing some lunch into her g-tube, we went back in for her blood draws. She jumped a bit at the prick of the needle, but simply sighed and smiled. Thanks, Jennah …
Finally done at Seattle Children’s, we cruise back to the eastside to get her cleared by her pediatrician, who happens to be at the farthest practice we could find! Another long wait and Jennah takes a nap on the table … poor thing. After some more poking and prodding, she is finally cleared for surgery on Monday, April 25, Inshallah!
OK, I'm in a slightly better mood now ...
So where was I? Yes, she’ll be in a spica cast for 6 weeks and then put into a brace, for which I did manage to request purple cushions! The brace will be removable for baths and we’ll wean her off within another 6 weeks, inshallah.
Then we went in for xray. We’ve had so many xrays that we should be issued a radiation monitor button. The usual …
XRay tech: “Mom, any chance you can be pregnant?”
Me: “Good lord, I hope not!”
Same conversation every time. I don the lead apron, which sadly I recognize are new since our last visit a few months ago. I take off Jennah’s diaper and she proceeds to urinate, as usual, on the table despite my pleas for her to pee beforehand. The girl just does not listen to her mom’s instructions! :)
Our next visit is with the surgical team … our surgeon, a resident, a physician’s assistant, and his nurse (who won’t be in the surgery, but she’s awesome). While waiting, Jennah took the opportunity for a nap in my lap and I finished my homework due later that evening. The “Around-the-World” procedure consists of the following:
• Bilateral acetabuloplasty – reshaping of the hip socket (acetabulum); nails may be inserted to help shape and then removed after a year or two
• Bilateral osteotomy – reshaping the femur heads
• Bilateral tenotomy – cutting of abductor and adductor muscles to manually loosen the tone and, hopefully, prevent dislocation again in the future.
Procedure, including anesthesia, will last upwards of 6 hours. Anticipate at least 4 days in the hospital post-op. Expect a lot of discomfort and pain. She’ll have an epidural put in. Expect recovery to last throughout the summer. Good times. Pray a lot.
Then it was time for our P.A.S.S. (Pre-Anesthesia Surgical Services) appointment. The most non-invasive appointment of our day and Jennah loses it. She screamed bloody murder through the whole meeting and all the way through the halls as I tried to calmly carry her (32 lbs of screaming, wobbling Jennah) to the outside. You can see the poor kids in the surgical waiting area thinking, “What in the hell did they just do to her behind those closed doors???‼!”
After calming her down and forcing some lunch into her g-tube, we went back in for her blood draws. She jumped a bit at the prick of the needle, but simply sighed and smiled. Thanks, Jennah …
Finally done at Seattle Children’s, we cruise back to the eastside to get her cleared by her pediatrician, who happens to be at the farthest practice we could find! Another long wait and Jennah takes a nap on the table … poor thing. After some more poking and prodding, she is finally cleared for surgery on Monday, April 25, Inshallah!
OK, I'm in a slightly better mood now ...
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